A Story of Addiction & Loss

Category: Drug Addiction (Page 2 of 14)

Justice For My Beautiful Boy

Matt, it’s been 32 months and 27 days since you left my life.  Today I’m sitting on a plane heading into my nightmare.  My grief hitched a ride on my chest weighing me down knowing that my trip has nothing to do with joy.  This trip is to defend your life.  To sit in a room with men who believe it was fine to dump you at a hotel in a compromised state letting you die alone.

My soul is shaking as we fly closer to the reality that you won’t be picking me up as I land.   There will be no happy reunion between you and me.   No seeing your handsome face or hearing your voice.   No bear hugs while I sink into your arms feeling the warmth of your love wrap itself around my heart.

I am landing in enemy territory.   I am trying to keep my warrior mask intact but as we get closer I can feel the cracks forming as my fear of facing how you died smacks me like a brutal whip.   Grief and guilt have settled into my soul once again.   The what ifs and I should haves are dancing in my battered brain. Taunting me with what should have been and what truly is our reality.

I stare out the window into the clouds looking for you.   Looking for Jesus.   Searching for a sign on how I will survive this part of our journey.   I dreamed of returning to Florida.   I dreamed of visiting your new life.  Seeing you in recovery living life to the fullest.   I dreamed of walking on the beach side by side as we have so many times in the past.   I dreamed of what your future would hold as a husband and then a father.

These dreams now something that will never see reality.  Scattered like the ashes after a fatal fire in a fast moving wind.   I chase after the torn fragments of our life and hold them close to my heart.

Those dreams of what should have been will fuel my fight for justice.   I am here breathing where you took your last breath.   I am here letting my grief wash over me.  I am here gathering the strength to stand up to those who wronged us both.   I am here to defend my precious son.   I am here to tell the world your life was worth saving.   I’m here to let the world know I will never be silenced 💔💔💔IMG_1277

There Is No Black and White In Addiction

 

 

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Matt,   Today is my birthday.   My third without you.   I still have such a hard time believing that there will be no phone call or card signed Love Matt.  You won’t be hiding in the house to surprise me.   Once again I try to get though another milestone without you.   I’m in New York.   Funny you know I would have rather spent my day at the beach walking on the sand listening to the sea birds and the crashing of the ocean.   But my article about your addiction was featured in a magazine and I was invited to attend the reveal here in NY.  This humbling experience was something I could not miss.

Since your death, I have become an advocate for the treatment of addiction.   I write and speak about how horribly you were treated by the Insurance Industry and treatment facilities.  I speak out about the ugly stigma that follows addiction.   I work to make changes in our state laws.   It’s the only way I survive.  Your death rocked me to my core.   Everyday I struggle to find my new normal.   Everyday I pray that you are finally at peace.   Everyday I wake to this empty house.    My regrets about letting you go to Florida smack me swiftly in the face.  I feel so guilty about your death.   I still can’t believe I didn’t see how wrong it was for you to leave home and go so far away.   The thought of you being dumped in a motel to die kills me more and more each day.   My guilt beats at my soul.   My brain questions what kind of mother lets her son go so far away?

I wanted you to have a fresh start at a new life.   I was tricked into believing that new people, places and things would cure you.   All those books written about addiction by people who think they are experts in the field led us down the path of no return.   Parents who talk about tough love and disowning their kids because of addiction.   So much misinformation published by people who think they have the answers to addiction.   Don’t they know that every family is different?

There is no black and white once size fits all in this ugly disease.   Misleading parents like me that if we follow what they did our story would have the same happy ending.   Looking back I should have followed my gut.   I should have known you would never survive without your family close by to support you when you fell.   I knew you better than anyone and still I let you go.   Those books have been trashed as they should have been so long ago.

It’s ironic.   I wrote the truth about us.   The ugly, horrible, brutally honest truth about how your addiction stomped our family to death.   How your addiction shattered us to the core.   How I became addicted to your addiction and turned into a person I no longer recognized.   Funny, the editor I sent it to told me it was too ugly to publish.   That both you and I were horrible people.   That no one would want to read my work.

At first her words crushed me.   Then reality hit.  The reason this epidemic continues to have such power  killing far more than any disaster or war is because many people don’t want ugly.   People want pretty.  People want fairy tale endings.   People want to think that if we continue to ignore addiction it will go away. That it won’t affect our families.  That addiction is something that happens to others.  That addiction is something we can walk away from and never look back.   We only want to hear about beautiful children from perfect families who go on to lead successful lives.

I blame myself.   I should have never let you go.   I lived the ugliness with you.   Yes, there were a few glimpses of pretty.   The few times you came back as the Matt I knew before.   Times when the possibility of our fairy tale ending played tricks with my mind.   Your addiction was more powerful than even I could have ever imagined.   Your addiction won.

Now I live with regret.   I live with guilt.    The joke was on me.  I live knowing that birthdays, holidays and life in general will never hold the same meaning.   Oh how I wish I read how brutally ugly the true reality of addiction could be.

The First Year Fog

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Matt.   The professionals call it grief brain.   I call it being hit in the head by a tornado.   I used to call myself a smart girl.   Once a capable human being.   Able to care for the tiniest, sickest infant.  Functioning at my highest capacity.   Being a wife.   Being your mother and fighting your battle like it was my own.   Never missing a beat.   Being able to rattle off a diagnosis and calculate the most complicated drug dose while working in the NICU.    Today my brain is scrambled.  Like an egg thats been dropped from the counter.   My brain in pieces all over the floor.   Shattered like the town that was once whole but now nonexistent.

All I remember is being wrapped in a fog.   After hearing the words I’ve dreaded throughout your struggle with addiction.   “It’s Matt, he’s dead”.   I remember feeling like my body was no longer attached to my being.   I was in another dimension.   Unable to hear or feel anything.   I felt a protective cocoon envelope my soul and I heard the door shut with a slam.   My brain protecting itself from what would become my harsh reality.

I feel like I’m walking around in a soft, warm fog.   Everything I used to be now a distant memory.   I feel safe here.   My grief cocoon.   Surviving  the first year without you has been excruciating.    I try to break free of the fog.   In my psyche I know I must come to a place in time where I can face reality.   I just don’t know if I can survive.    I’m told the brain protects us from overwhelming, crippling grief.    I say thank God it does.    I would have lost my mind months ago if my fog hadn’t settled over me like it does over the harbor on a humid night.   Protecting my heart from the harsh reality of what has become of my life.

My nightmare keeps trying to break through.   Reality continues it attempts to seep through my fog like blood soaks through a cloth.    My brain continues to resist knowing I am consumed with disbelief and I’m struggling to accept my new reality.

There are days I feel like I’m losing my mind.   Days I just cannot allow myself to believe there will be no more you.    I’m having trouble believing I’ve survived a year without hearing your voice or seeing your smile.   I go through the motions of life.   I get up and crawl through the grief punches.   I put on my mask to face the world but in my mind I’m gone.   I’m told I made it through all the firsts.    Like I should be given that purple ribbon of grief and put your loss behind me.    It’s time to live again.    What no one understands is that living is the most painful thing I do.

My grief has become a part of who I am.   This first year has been the hardest time of my life.   Brief memories find their way through my fog.   Memories of us on the beach.   Life before your demons took over.   Memories of a mother and her son fighting for his life.   Those struggles seem like a walk in the park when compared to the reality of my life.   I go there briefly knowing that if I stay I will be lost forever.

Everyday is a struggle.   I battle my demons now as your demons took you away.   The guilt of the what if’s and I should haves spin out of control threatening to crash into my fog with a blazing light exposing me for who I really am.

Learning how to breathe.   Learning how to pretend that I feel.   Learning that I must go on without you.   I feel like an infant needing to learn how to navigate a new life.     A broken mother searching for the pieces of her mind.   Settling back into the protective fog when grief whips her heart.

I’m told life goes on.   I’m told the grief changes.   I’m told it gets easier.   For now my fog is a welcome place.   I’m not ready to see the future without you.   My fog wraps me in the warmth of loving hug.   I will emerge when I’m ready.   Until then I will allow my mind and heart to heal at their own pace.   For now my fog is a where I need to be………

 

 

 

United By Addiction. Bonded By Grief

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Matt,

I had the amazing experience of attending The Fed Up Rally and the Unite to Face Addiction concert in Washington DC this weekend.   When I was in the midst of the battle to find you help I felt so alone.   I felt isolated.   I felt that no one cared.   I had no idea how many other mother’s knew my heartbreak.

I was having second thoughts about attending.   Every weather report dampened my spirits and made me think of staying home and staying dry.   Then I looked at your picture and felt that gut punch of knowing you were really gone.    The broken system  failed us both and you paid with your life.   As I continued to stare into your  beautiful eyes, I felt a power in my soul like I’d never experienced  before.   I’d walked through hell during your active addiction, why would I let the threat of heavy rain and wind keep me away.

I read about the Rally in the paper.   They were asking for stories of recovery and hope.   I had written a piece telling our story and included your picture.   To my surprise, It was published and I was humbled.   I also sent your picture to be included in The Addicts Mom’s quilt.   There was no way I was going to miss seeing your face being remembered at this amazing event.

I took a bus early Saturday morning with a small group from Delaware.   We knew each other’s grief, each of us losing a child.   Saturday was an emotional day for me.   It was the nine month anniversary of your death and here I was riding a bus in the rain to attend a rally for drug addiction.   My tears fell along  with the rain drops as I remembered the struggle to find you help.    Unfortunately, Delaware had no rehabs.   We have one detox unit that never had any beds when you finally agreed to get clean.    I remembered conversations begging your insurance company to approve treatment only to be told that you had no days left.   How could they treat your disease like you were not worth the time or money spent to save your life?   Never in my wildest dreams did I ever think you would die and I would be on a bus heading to Washington participating in a march to The White House.

The bus dropped our group off at the hotel.   We grabbed our rain gear and headed to the memorial.  The sky was grey with a light rain falling mimicking my mood.   The closer I got the more I could feel the atmosphere changing.   When we reached the mall, I was shocked at the size of the crowd.   People just like me.   Strangers who knew my grief and walked in my shoes.   Strangers whose faces looked just like mine.   Shock and disbelief marked us as those left behind.  Eyes swollen and empty as we wiped tears away with the sleeve of our shirt.

The stage held a memorial filled with names of those who lost their battle.  I was brought to my knees when I saw your name.  My precious son surrounded by hundreds of those who like you are gone forever.  I felt that too familiar gut punch as my tears started to fall.  I wore your picture on a lanyard around my neck.   I grabbed it and started to sob.     A complete stranger came and wrapped me in her arms.   Whispering that she understood my pain.   Here we were two mothers, strangers, holding each other up as the rain mixed with our tears.    Sharing stories of children lost.   I witnessed the kindness of strangers forever bonded by a common grief.

I was waiting outside The Addicts Mom’s tent.   They were preparing to unveil the quilt.   I remember the wind blowing  and the rain hitting my face.   My eyes searching the many squares until I saw your face.   Your beautiful smile right in the center of this beautiful handmade creation.   The sound of a wounded animal came from my lips as I stood letting the rain mix with my tears hugging myself against the heartbreaking pain.   Arms reached for me.   Another mother who got it.   We rocked each other in the rain and wind as we shared our heart breaking grief.   Another mother living my life, knowing my pain.   Angels walking among the crowd comforting strangers.

We formed groups as we prepared to walk to the White House.   I looked around in awe.   Thousands of people all here for the same reason.   The broken system failed their loved ones.   I was no longer alone.   We marched together.   We hugged each other.   We shed tears together as we shouted out against a system that must be changed.   We were empowered by the numbers.   We were heard.   I walked back to the hotel with a couple who lost their son.   We now call each other friend.   This event formed a bond never to be broken.

Sunday morning came with my familiar face in the mirror.   Puffy eyes staring back at me.   My face changed by grief.   The price of addiction is what I now call my new look.   I have forgotten how to smile.   I attended a breakfast in Arlington hosted by The Addicts Mom group.   A group no mother wants to belong to but the circumstances of life have left us no choice.   It was emotional to meet all the mothers I’ve supported and who have supported me on Facebook.   These women have walked through the same hell and get it.   Again I came face to face with the quilt.   Your smiling face staring back at me and again another mother held me as I shattered into pieces.

There really are no words to describe Sunday’s event.   The crowd tripled from Saturday.  The weather cold, and dreary.   I stood on the hill by The Monument.   In awe at the number of people from all parts of the country coming together to demand better care for the disease of addiction.   Many holding pictures and banners with names and dates.   All here to honor the ones they loved and lost.  Those in recovery were celebrating  a new sober life.   Everyone had a story to tell.   Strangers sharing their souls with strangers.  Sharing the bonds of love, loss and hope.

Sunday evening Joe Walsh and his fellow musicians held a concert to honor those lost and those struggling to survive.   A tribute to this deadly disease.   The crowd came alive.  When the music started the atmosphere became one of happiness and hope.   Rich and famous artists coming out and admitting they were once addicts.  Speeches by people who care and will fight to make changes.  Hope.   I could feel it in the air, at last there was hope.   Our new Surgeon General gets it.   Lawmakers now ready to join our fight  providing equal treatment for the disease of addiction.  Hope.   I stood with a crowd of strangers and danced to the music.  Joy I hadn’t felt for so long coursed through my soul.  We held onto each other when a  song hit a nerve and tears returned.   We sang out loud.  We were empowered.   Too many people fighting for the same cause.   Everyone remembering loved ones.   Honoring them by speaking out against the stigma.

I still get chills when I look at my pictures of all the faces lost.   Pictures of people coming together and lifting each other up in spirit.   Strangers becoming friends.   Promises of keeping in touch.  Of working together for the greater good.   I’m humbled by this experience and I know I will never be the same.   I no longer feel alone as I remember the beauty of seeing thousands of people coming together demanding change.

There is a saying, If God closes one door he opens another.   My new door has opened and I know I have thousands of people fighting the same fight.   I will be your voice.   I will remember your smiling face on that quilt surrounded by a hundred others.    No longer alone but humbled by the compassion of strangers.

Matt’s Damn Angry Mother

 

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Matt,   It’s been six months and I’m still trying to breathe.  I’ve been told that by now I should be angry at you.  Enough time has passed that the anger should come.  The well publicized stages of grief states that I am in the anger phase.  Well, I’m angry.  I’m damn angry.   I’m angry at the broken system that let you down.   I’m angry that the insurance industry  places more value on saving money than saving lives.   I’m angry that addiction is discriminated against by both the medical community and the Insurance Industry.  I’m angry that addiction is not treated like the disease it is.   I’m angry at the Lawmakers who turn a blind eye to this epidemic,  allowing scumbags to run sober living houses only caring about collecting rent from their tenants and not giving a damn about helping the addict.

I’m angry that lawmakers sat back and allowed relapsing addicts to be thrown into the streets or taken half unconscious to motels where they later died.   I’m angry that my handsome, funny, loving son died in a motel room because no one gave a damn.   I’m angry that the health care system continues to allows overprescribing physicians to practice.   Changing everyday people into addicts and destroying their lives.   I’m angry that addiction carries a stigma.

I’m angry that everyday I live with the crippling  pain knowing that I will never hear your voice or see your smiling face again.  I’m heartbroken knowing I will never dance at your wedding or hold your child in my arms.   I’m sick that you have been robbed of a beautiful life.    I’m broken when I see the pain on your brothers face and hear his voice crack when he says your name.   I’m angry that our lives have been demolished beyond repair.   I’m distressed that most of my friends have disappeared.  The ones that remain I can count on one hand.   I’m heartbroken that I can no longer spent time with you walking our dogs by the sea we both loved.  I’m so damn angry I want to scream..

There are days I get on my bike and ride like the wind.  Pushing myself to release the pain.  Crying, praying  and screaming as I petal  releasing this anger that everyone thinks should be directed at you.   Matt, please know I could never be angry at you.   I witnessed your struggle.  I felt your pain as we battled your demons together.   I know you fought your best fight.   I was there by your side with every relapse, every rehab, every struggle.   I know you did your best to fight your demons.   I am not angry at you my son.  I’m proud of the man you were.  Of the battle you fought and the life you tried to live.   You will always be my hero.   No anger, just overwhelming grief that your life is over.

Now my battle begins as I learn to  use my anger to fight for change. Your struggle gave me the education of a life time.   Witnessing the roadblocks and living the discrimination that you faced everyday gave me knowledge I never wanted to know.   It gave me a clear picture of the brokenness of the system in place that was not only responsible for your death, but the death of so many others.   My list is long.  I’ve got all the time in the world.  You are gone and I must find a new purpose or I will never recover.

Funny,  since you’ve been gone I’ve become absentminded.  I call myself the dumb girl.  I laugh and try to explain to strangers that once a long time ago I was a smart girl.  Then my son died.   I’m told it called grief brain and I’m a living example.  I started writing lists of every barrier we encountered during your journey.   I was cleaning out my desk and this is what fell to the floor.   My thoughts scribbled on a piece of balled up paper.   With this paper came a wave of grief.   Seeing my scribble hit me again that this is my reality.   This list of wrongs that needed to be made right.   Memories of your struggles sucked the breath out of my lungs and punched me in my gut.   A powerful grief punch whenever I relive our past.   A single sheet of balled up paper brought me to my knees.   I could feel my anger burning with each sentence I read.   So many things that could have saved your life helped end it.

My List………….

Pain clinics and the overprescribing pill pushers that run them must  be regulated and have their prescribing practices monitored  facing disciplinary action when their patients become addicted.   Charged with murder when they die.

The medical community needs to be held accountable for their treatment and perception of the addict.   Doctors must become expert in addiction and treat it as any other chronic, treatable disease.  Addiction needs to become part of the curriculum in medical schools educating new physicians in this misunderstood disease.

Rehab facilities and detox centers must have  beds readily available.   The window of time is brief when the addict is ready to accept help.   Precious time must not be wasted.   The Insurance Industry must recognize addiction as a disease and extend the allowable time covered in rehab giving those suffering a fighting chance at recovery.

Matt, my anger will never be aimed at you.  You had a disease that should have been treatable not terminal.    Our current model of care  allows a stigma to exist against a vulnerable population of people with a horrible disease.  My anger has given me new purpose.   My anger  will help me go on without you.   My anger will allow me to step out of my comfort zone and fight for you.  I will say your name.   I will tell our story.   I will  show other mothers that there is no shame in addiction.   I will join the fight to stop this epidemic from killing the next generation of beautiful people.

My anger will fuel my purpose.   You are gone but you will live on forever through me.   As long as I have a breath it will be yours.  Forever in my heart.  Forever in my fight.   RIP my beautiful boy your angry moms got this. ❤️💔

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