Mother's Heartbreak

A Story of Addiction & Loss

Category: advocate mom battling cancer

Facing And Fearing The Future

Matt,   I feel like the world is spinning out of control.   My anxiety is through the roof.   Some days my heart feels like it’s going to beat out of my chest.   This is exactly how I felt those early months after your death.

I never remember having such fear over what the future holds.   The combination of your loss and my having cancer has once again knocked my world off its axis.   I find it so hard to believe you have been gone for 5 years and 5 months.   I find it hard to believe that this cancer has derailed my plans for a healthy, active future.

I have begun to fear what the future might bring.   Somedays the pain of your loss hits with an unimaginable force.   On those days I feel like I just might lose my mind.   The thought that you are really gone is still so foreign to my mind and heart.   Even today I walk through your closet smelling your clothes searching for a lingering scent.   I run my finger over your picture looking at your smiling face wondering how long my pain will remain.

Then there are the days my cancer fills my mind.   I relive the day and those words that once again shook me to my core.   Exactly like that day and those words letting me know you were gone.   I wonder if the treatments worked.   If the cancer will return.   I wonder if you can see what is happening here in my life.   I wonder if we will be together again.

I try to keep busy.   Exploring new ways to keep those frightening thoughts at bay.   Unfortunately, the back surgery has deterred me from all those physical activities I once did to stay sane.   Biking and kayaking my two go to stress reducers have been put on the back burner. I now remember you so vividly walking like you were an old man.   I remember when I would encourage you to be active in hope of helping your pain and you would look at me like I was crazy.    Well Matt, I get it now.   I walk like an old lady.

I read books about Heaven.   Written by people who had near death experiences and lived to tell of peace and beauty.   They tell of amazing colors and of not wanting to return to earth.   They speak of how their battered bodies are now whole and healthy.   They tell of meeting loved ones who had passed before them and of joyous reunions.   I devour these books looking for my own peace praying that what I’m reading is true and you are young, healthy and happy living in Heaven.   I wonder how long it will be until we are together again living in this place they refer to as paradise.

The future has never held so many unknowns for me.   At least I fooled myself  into thinking I had control when in reality if I had control you would be alive and healthy with a wife and children and I would be cancer free.

They say the future is promised to  no one.   That everyday is a gift from God.   That “life can only be understood backwards, but it must be lived forwards”.    Looking back there are so many things I would do different.   Looking forward continues to take my breath away.   So many unknowns lurking in the future.

I will continue to pray for God’s peace in accepting my future without you in it.   I pray to be cancer free and to be given the time to accept those things I cannot change.   Know you are missed and loved every moment of my past and my future……..

Looking Back Through Tears.

Matt, it’s been a while since I’ve written.  I’ve thought of you everyday but this cancer treatment and the two surgeries have really beat me down.  I don’t even have the energy to cry about everything that’s happening to me.  Your loss hits so hard every time I remember you complaining about your back pain after your surgery. 

Never in a million years could I ever have imagined that pain would one day invade my body as like you I’ve had back surgery and I’m filled with screws and rods.  

How I wish you could come back just for a few hours.  I would beg your forgiveness for not being more compassionate towards your pain.  I always thought you just wanted an excuse to use the opioids that finally got you addicted and contributed to your death.

All I wanted to do was get you off the pills so you could get your life back in order.  Little did I know how you were suffering every day of your life.  

I guess that saying is true, Until you walk in someone’s shoes keep your opinions to yourself.  I now understand why you would never sleep in your bed.  I’d always come downstairs to find you sleeping on the couch with the TV blaring.  I blamed you getting high and falling asleep in positions that looked horribly uncomfortable.  I remember waking you up and urging you to go to bed only to have you scowl at me.  

Now I get it. I can’t believe that I have such a hard time sleeping through the night.  I start out in my bed but wake after a few hours in excruciating pain.  I need to get up and walk until the pain settles and then I find myself in the recliner just like I found you.  

I’ve also been given OxyContin.  I’ll admit I had no choice but to take a few as my pain was unbearable at times.  Every time I handle that prescription bottle I flash back to you.    It is the only thing that helps with the pain but I’m terrified of becoming addicted like you did.  I can’t imagine how hard it was for you to continue to live in pain every moment of every day.  I feel like God is teaching me a very valuable lesson in empathy.  I truly had no idea what you went through until now as I’m going through the same painful journey after back surgery.  

I wish we could go back in time.  Knowing what I now know I would have treated you with compassion instead of expecting you to go to work everyday functioning like a person in perfect shape.  Telling you I understand now really makes no difference as you’ve been gone for 5 years and 2 months.  

I hope you hear my prayers for you.  I hope you know how sorry I am and most of all I hope you forgive me.  I’ve been living like this for 3 months, you lived with this for 7 years as you struggled with chronic pain and the horror of addiction.  

There are no words to describe my grief over losing you and now losing me.  I can no longer advocate the way I used to.  I can’t walk the dogs or do anything that once brought me stress relief and a slice of happiness.  This is not the life I envisioned for us.   I saw you married with children, living at your happy place by the sea.  I saw family vacations with grandkids and grand pups running and jumping in the surf as you and I sat together on the sand sharing the beauty of life.  I saw you and Mike growing older together sharing the joys of fatherhood.  I never saw you dying at 37 or me fighting cancer at 63.   I guess it’s true, we have no control over how life will twist and turn.  That for me is the hardest to accept.  I thought I could save you.  Now I’m fighting for my life not knowing what the outcome will be.   I can only hope that one day we will be together again sitting by the sea, no longer in pain but in paradise. 💜♥️

The Blessings Of Incidental Findings

Matt,

I must admit when you died I was so pissed off at God.   I felt let down.  Abandoned.  Like my prayers to keep you safe fell on deaf ears.   That my prayers weren’t good enough to be answered.   God and I had many ugly conversations as I sat in the dark and said things that would have had my grade schools nuns running for the Holy Water to wash out my mouth.

I was shocked at the depth and power of my anger.   Growing up in the Catholic church attending Catholic School I knew I had better straighten out my thoughts and get control of my out of control mouth.   I dared God to appear to me and explain why he let you die when I prayed you would beat your addiction and recover to live a beautiful life.

I was a spitting mad grieving mom and nothing would ever convince me that Jesus knew what was really happening in your life when I just had my fantasies of how you were living.   All I wanted was you back.   Under any circumstances.  I really didn’t care if you were suffering from your disease, I just wanted you back.

I remember going to your garden at our church and sitting under the cross.   Seeing your name carved in stone was like another slap from God.   Seeing your name, birth date and death date was having my soul ripped from my body and shattered into a million pieces.   No mother should ever see her precious child’s name on a cold stone.

I took my anger and turned it into an advocacy against those who poisoned you with their pills.  I was relentless.   I held nothing back.   I named names and called people out for who they truly were.   I began helping those who reminded me of you.   Fighting for them as I fought for you.   Four years of advocacy work culminated in six bills that would change how Delaware treats those who suffer from your disease.  I surrounded myself with the best advocates Delaware had to offer and channeled my anger into leaving a legacy to honor your life.

Little did I know that once again my life would be turned upside down.   Looking back it’s really not surprising.   My friends kept telling me to take a much needed break.   To just enjoy the fact that summer was here and Legislative Hall was out of session.   But advocacy is in my blood.   Hard to turn it off when people are calling for help to find treatment.   No way was I not going to do everything in my power to get another mother’s son or daughter in a safe place.

Well, it seems that God had another plan for me.   Funny how God just decides to take the stubborn bull by the horns and say enough.

I know you know.   I have this crazy uncommon cancer.   Of course why not?   You and I were always the misfits.

Except this time I have no anger against God.  I have never felt closer to Jesus in my entire life.   It seems Jesus has been beside me all this time.   I just ignored him.   My grief blocked his peace.   My anger did not allow me to feel his presence.   He was knocking all along.

Jesus has taken over my care.   He has placed me in the hands of experts.   Jesus has saved me from the wrong diagnosis.   He has saved me from an extensive surgery that might not have been the best first step in my fight.

Matt, I know you are here.   I feel you and see your smiling face.   You gave me such a gift by getting your message to me to fight.   You told a friend you still wear your ball cap backwards.   You told her about my cancer and my advocacy.   You talked about your brother by name.   So many messages I know it’s you.

So just like Jesus you never really left me.   I just needed to let my grief open to see the most amazing light shining through.   I have a peace like never before.   I feel totally confident that Jesus has both of us in the palm of his hand.

Matt,  you were always my beautiful boy.   Now I know you are my guardian angel.   I know that you will be watching from heaven.   I know you are at peace and that is the most beautiful gift I could have ever received in the middle of my storm.

Blessings continue to find me.   Ray is amazing.  My friends, those precious few who stood by me after your death are carrying me through this new journey.

Blessings totally unexpected but so welcomed.   I continue to learn from you my beautiful boy.   I now sit and remember our conversations when your wisdom shined though.   Believe me Matt, I’m going to enjoy those little things I always overlooked.   I see you in the stars,  I see you in the sunsets.   I know Heaven is your beach and you my son are enjoying a peace by your precious sea.

I will fight for you and my family.   But when my time comes meet me by the sea.   We will run through the surf together.   You wearing your ball cap backwards and me with my crazy curls.  Together forever one day.   Godspeed my boy.   Tell Jesus your mom says thanks for not giving up on her.

 

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