A Story of Addiction & Loss

Category: grief (Page 12 of 13)

The First Year Fog

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Matt.   The professionals call it grief brain.   I call it being hit in the head by a tornado.   I used to call myself a smart girl.   Once a capable human being.   Able to care for the tiniest, sickest infant.  Functioning at my highest capacity.   Being a wife.   Being your mother and fighting your battle like it was my own.   Never missing a beat.   Being able to rattle off a diagnosis and calculate the most complicated drug dose while working in the NICU.    Today my brain is scrambled.  Like an egg thats been dropped from the counter.   My brain in pieces all over the floor.   Shattered like the town that was once whole but now nonexistent.

All I remember is being wrapped in a fog.   After hearing the words I’ve dreaded throughout your struggle with addiction.   “It’s Matt, he’s dead”.   I remember feeling like my body was no longer attached to my being.   I was in another dimension.   Unable to hear or feel anything.   I felt a protective cocoon envelope my soul and I heard the door shut with a slam.   My brain protecting itself from what would become my harsh reality.

I feel like I’m walking around in a soft, warm fog.   Everything I used to be now a distant memory.   I feel safe here.   My grief cocoon.   Surviving  the first year without you has been excruciating.    I try to break free of the fog.   In my psyche I know I must come to a place in time where I can face reality.   I just don’t know if I can survive.    I’m told the brain protects us from overwhelming, crippling grief.    I say thank God it does.    I would have lost my mind months ago if my fog hadn’t settled over me like it does over the harbor on a humid night.   Protecting my heart from the harsh reality of what has become of my life.

My nightmare keeps trying to break through.   Reality continues it attempts to seep through my fog like blood soaks through a cloth.    My brain continues to resist knowing I am consumed with disbelief and I’m struggling to accept my new reality.

There are days I feel like I’m losing my mind.   Days I just cannot allow myself to believe there will be no more you.    I’m having trouble believing I’ve survived a year without hearing your voice or seeing your smile.   I go through the motions of life.   I get up and crawl through the grief punches.   I put on my mask to face the world but in my mind I’m gone.   I’m told I made it through all the firsts.    Like I should be given that purple ribbon of grief and put your loss behind me.    It’s time to live again.    What no one understands is that living is the most painful thing I do.

My grief has become a part of who I am.   This first year has been the hardest time of my life.   Brief memories find their way through my fog.   Memories of us on the beach.   Life before your demons took over.   Memories of a mother and her son fighting for his life.   Those struggles seem like a walk in the park when compared to the reality of my life.   I go there briefly knowing that if I stay I will be lost forever.

Everyday is a struggle.   I battle my demons now as your demons took you away.   The guilt of the what if’s and I should haves spin out of control threatening to crash into my fog with a blazing light exposing me for who I really am.

Learning how to breathe.   Learning how to pretend that I feel.   Learning that I must go on without you.   I feel like an infant needing to learn how to navigate a new life.     A broken mother searching for the pieces of her mind.   Settling back into the protective fog when grief whips her heart.

I’m told life goes on.   I’m told the grief changes.   I’m told it gets easier.   For now my fog is a welcome place.   I’m not ready to see the future without you.   My fog wraps me in the warmth of loving hug.   I will emerge when I’m ready.   Until then I will allow my mind and heart to heal at their own pace.   For now my fog is a where I need to be………

 

 

 

Surviving The Reality Of Mother’s Day

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Matt.   Mother’s Day is two days away.   I can feel the dread hanging outside my heart.   Like a lost dog it’s crying to be let in.   I’ve fought all week, keeping my mind so busy hoping that I would forget what this Sunday signifies.   I’m fighting for my life.   Battling my reality against the fantasy I’ve created in my mind.   I can not allow myself to believe that you are gone.   I must protect my sanity with every ounce of my strength.   In my mind you are living at the beach.   Living life in recovery.   Working and healthy.   My fantasy is where I go when the abyss calls to me.   Threatening to take me to a place I can not allow myself to go.  Hanging on like the cat hanging from that tall tree.   Knowing if my grip loosens I will fall so deeply into grief I may never return.

My survival depends on how long I can pretend.   Reality is dark and ugly.   My legs push through quick sand trying to run from what is real.   Trying desperately to keep my mind in fantasy mode.   Knowing the mask I wear will crack and crumble if reality sinks in.   I tell myself it’s just another Sunday.   I avoid looking at Mother’s Day cards when shopping.   I stay as far away as I can from reminders that there will be no more cards signed Love Matt.

This grief can never be described.   There are no books instructing me on how to survive a day that brings such incredible pain.   A day that even Hallmark can not put into words.

I plan to run away.   Like an angry, unhappy child I am running to find my peace.   Our sea beckons me to come, to breathe and to remember.   I need to be where you were.   I need to feel you wrap around me like the ocean breeze.   I need to hear the seagulls cry your name.   I need to sit and hold onto myself while allowing my mind to go there.

I will allow myself to remember past Mother’s Days spent together by the sea.   Sitting close as the sun kissed our skin with warmth.   Walking together with the pups.   The surf soaking our pants as unexpected waves hit.   Laughing as wet, sandy dogs ran barking and biting at the surf spray hitting their noses.   A mother and her youngest son spending time together at their peaceful place.   A son, a man fighting a horrible disease.   A mother who refused to give up.   A mother now grieving your loss.   Her heart shattered into a million pieces never to be whole again.

Those days full of hope and dreams.   Sun, surf and a love shared between a mother and her son.  You were never too old to say I love you Mom.   Never too old for hugs.   A little boy in the body of a man.  My forever towhead running on the beach squealing with delight as the waves rushed to pull you in.   Reaching for me to be your anchor, pulling you safely ashore.   You and I had something special.   A truth, an honesty that few shared.   I was never afraid to tell you how much you meant to me.   How much your addiction changed my life.   How badly my heart ached for you and how helpless I felt in your battle.

This Mother’s Day,  I will allow bits of reality to find a path through my fantasy.   Memories now so painful and precious are what I have left of us.   Those precious days we shared by the sea.   Like a film projector, I will control how much my heart can handle.   I will protect my sanity while allowing those memories to keep you alive.   I will look for signs that you are there walking by my side.   I will close my eyes and hear your voice.   I will see your smile in the clouds.   I will pray that you know I’m here in our special place looking for the missing piece of my heart.   Be my anchor my beautiful boy.   I need you to keep me sane.  Until we meet again I will always look for you.

Grief and Guilt My Constant Companions

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Matt,   Grief is defined as keen mental suffering over loss.   It encompasses sharp sorrow and painful regret. Grief and Guilt take turns pounding pain into my heart.   Each hitting me when I least expect.   Sweeping me up in emotions I can no longer control.   I never knew that Grief could physically hurt.  I never knew that Guilt could be so cruel.  My body feels beat up. Every muscle and bone feels the pain of loss that no one can see.   This incredible anguish cannot be described.  I could never imagine that this type of pain existed until it crept into my soul the day you left me behind.

My books on Addiction have been replaced by books on Grief.  Books that no mother should ever have to touch or read.  Books on the stages of grief and how to survive each one.   Titles lining the shelves that bring tears to my eyes.   The Bereaved Parent, Transcending Loss and When A Child Dies From Drugs have replaced Stay Close, An Addict In The Family and Beautiful Boy.   Those books gave me a false sense that you like their children would also survive.   Those books met their demise on a snowy, grief filled night as I tossed each one into my roaring fire.   These books made me feel like I failed to be that perfect parent who did everything right.  You know the parents who can brag that their child beat the demons and now leads a productive life.   My jealousy rears its ugly head and  my Guilt slaps me like a foulmouthed child.  Where were the books that had our ugly ending?   The books that would have warned me that endings are not always answers to our prayers.   The books warning of middle of the night phone calls that bring parents to their knees..

Guilt then replaces my grief.  The what if’s and I should haves wrap me up in a tight cocoon refusing to let me go.  Feelings of failure course through my veins replacing my grief with powerful emotions of hopelessness and regret.   Flashbacks dance through my brain .   Things done and said in anger and frustration whirl through my mind.  Knowledge I have now eluded me then.   Trying to save you and survive life changed my rational mind into a crazy, calculating one.   Your addiction became mine.   Staying a step ahead of your demons took every ounce of my being.   Now, in a calmer state I see things clearly.   My mind in a rational state sees things I should have seen when I was losing it.   I have become someone I do not want to be.   My soul caught in a perfect storm.   Tossed between two painful emotions.   Grief and guilt holding hands as they dance over my heart.

Some days weathering the storm is almost impossible.  There are days I want the storm surge to carry me out with the tide.   To drown my grief in the sea we both so loved. To stop my pain, to sweep me away allowing my pain to dissipate with the sea spray.   Sadly, I have become a swimmer.   I am the one pulling parents out when I find them struggling to stay float fighting the same storm surge that has consumed my soul.    I throw the life preserver forgetting how soaked I am in my own grief and rescue those drowning in my sea.   Still there are days that even rescuing another has no impact on my heart.   I fall into the abyss of the perfect storm.   I wonder why your grip kept slipping from the life preserver I continued to throw in the midst of our storm. Why were you swept so far away from my attempts to save your life?   I look at the sea and remember holding tight to your small hand.   So tiny, but fitting perfectly into mine.   As you grew, your hand became harder to hold slipping away again and again until you disappeared.

There are days the grief storm is manageable.   Putting on storm shutters and hunkering down, I survive. There are days the power of the grief and guilt pulls me into the undertow of reality sucking the breath from my lungs.  This sea of grief and guilt ever changing is where I live since you left me that cold January day.    Navigating through the powerful waves on a daily basis.  Some days the waves hit gently and I can walk through without falling down.  Other days a wave hits without warning knocking me to my knees.   Learning to weather the unpredictability of my storm takes practice, patience and self forgiveness.    Navigating through this storm is tough.   Attempting to hold myself together while I slowly pick up pieces of broken sea glass that used to be my heart.

Matt’s Damn Angry Mother

 

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Matt,   It’s been six months and I’m still trying to breathe.  I’ve been told that by now I should be angry at you.  Enough time has passed that the anger should come.  The well publicized stages of grief states that I am in the anger phase.  Well, I’m angry.  I’m damn angry.   I’m angry at the broken system that let you down.   I’m angry that the insurance industry  places more value on saving money than saving lives.   I’m angry that addiction is discriminated against by both the medical community and the Insurance Industry.  I’m angry that addiction is not treated like the disease it is.   I’m angry at the Lawmakers who turn a blind eye to this epidemic,  allowing scumbags to run sober living houses only caring about collecting rent from their tenants and not giving a damn about helping the addict.

I’m angry that lawmakers sat back and allowed relapsing addicts to be thrown into the streets or taken half unconscious to motels where they later died.   I’m angry that my handsome, funny, loving son died in a motel room because no one gave a damn.   I’m angry that the health care system continues to allows overprescribing physicians to practice.   Changing everyday people into addicts and destroying their lives.   I’m angry that addiction carries a stigma.

I’m angry that everyday I live with the crippling  pain knowing that I will never hear your voice or see your smiling face again.  I’m heartbroken knowing I will never dance at your wedding or hold your child in my arms.   I’m sick that you have been robbed of a beautiful life.    I’m broken when I see the pain on your brothers face and hear his voice crack when he says your name.   I’m angry that our lives have been demolished beyond repair.   I’m distressed that most of my friends have disappeared.  The ones that remain I can count on one hand.   I’m heartbroken that I can no longer spent time with you walking our dogs by the sea we both loved.  I’m so damn angry I want to scream..

There are days I get on my bike and ride like the wind.  Pushing myself to release the pain.  Crying, praying  and screaming as I petal  releasing this anger that everyone thinks should be directed at you.   Matt, please know I could never be angry at you.   I witnessed your struggle.  I felt your pain as we battled your demons together.   I know you fought your best fight.   I was there by your side with every relapse, every rehab, every struggle.   I know you did your best to fight your demons.   I am not angry at you my son.  I’m proud of the man you were.  Of the battle you fought and the life you tried to live.   You will always be my hero.   No anger, just overwhelming grief that your life is over.

Now my battle begins as I learn to  use my anger to fight for change. Your struggle gave me the education of a life time.   Witnessing the roadblocks and living the discrimination that you faced everyday gave me knowledge I never wanted to know.   It gave me a clear picture of the brokenness of the system in place that was not only responsible for your death, but the death of so many others.   My list is long.  I’ve got all the time in the world.  You are gone and I must find a new purpose or I will never recover.

Funny,  since you’ve been gone I’ve become absentminded.  I call myself the dumb girl.  I laugh and try to explain to strangers that once a long time ago I was a smart girl.  Then my son died.   I’m told it called grief brain and I’m a living example.  I started writing lists of every barrier we encountered during your journey.   I was cleaning out my desk and this is what fell to the floor.   My thoughts scribbled on a piece of balled up paper.   With this paper came a wave of grief.   Seeing my scribble hit me again that this is my reality.   This list of wrongs that needed to be made right.   Memories of your struggles sucked the breath out of my lungs and punched me in my gut.   A powerful grief punch whenever I relive our past.   A single sheet of balled up paper brought me to my knees.   I could feel my anger burning with each sentence I read.   So many things that could have saved your life helped end it.

My List………….

Pain clinics and the overprescribing pill pushers that run them must  be regulated and have their prescribing practices monitored  facing disciplinary action when their patients become addicted.   Charged with murder when they die.

The medical community needs to be held accountable for their treatment and perception of the addict.   Doctors must become expert in addiction and treat it as any other chronic, treatable disease.  Addiction needs to become part of the curriculum in medical schools educating new physicians in this misunderstood disease.

Rehab facilities and detox centers must have  beds readily available.   The window of time is brief when the addict is ready to accept help.   Precious time must not be wasted.   The Insurance Industry must recognize addiction as a disease and extend the allowable time covered in rehab giving those suffering a fighting chance at recovery.

Matt, my anger will never be aimed at you.  You had a disease that should have been treatable not terminal.    Our current model of care  allows a stigma to exist against a vulnerable population of people with a horrible disease.  My anger has given me new purpose.   My anger  will help me go on without you.   My anger will allow me to step out of my comfort zone and fight for you.  I will say your name.   I will tell our story.   I will  show other mothers that there is no shame in addiction.   I will join the fight to stop this epidemic from killing the next generation of beautiful people.

My anger will fuel my purpose.   You are gone but you will live on forever through me.   As long as I have a breath it will be yours.  Forever in my heart.  Forever in my fight.   RIP my beautiful boy your angry moms got this. ❤️💔

Lost in Paradise

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Matt.

We made it to the house we’ve rented in The Keys.   I listen to the excited voices of Ray and our friends.   I feel nothing except lost.  It’s been one month and eleven days since you left.   My life has become a before and after movie.   I replay the scenes over and over in my mind.  Searching for that missing piece.  Still not able to believe you are gone.  Life before you died was full of hope.  Full of promises and joy.  Dreams of your future, a wedding and grandchildren washed away with the outgoing tide.  Life now is unbearable.   This pain is constant, crushing my shattered heart.

The house is beautiful.  The perfect location.  I find myself going through the motions of living.  I find my mask and secure it to my face.  Trying desperately to hide my grief.  I listen to Ray and our friends.  Smiles and plans of sunshine filled days.   Kayaking and biking.  Everything I once loved to do in this beautiful place brings no joy.  I am numb.  The walking dead.

Sleep continues to elude me.  I toss and turn listening to the sounds of the sea.  I lay in the dark silently crying.  I wonder where you are.  I wonder if you know that you’re gone.  I wonder how I will every survive the rest of my life.

Days are spent pretending I’m ok.   I find myself drawn to the back of the house.  The turquoise sea surrounds me.  The sun kisses my cold skin with warmth.  Nothing can penetrate the ice surrounding my soul.  I stare out at the beautiful water and remember your smiling face.  I look for signs of your presence.  I think of this trip.  The planning.  The joy.  The excitement I would feel at seeing you again.  I close my eyes and see us walking together by the sea as we’ve done so many times before.   I feel like I’m trapped in a nightmare.  This did not happen.  You could not be gone.  My mind has become an enemy.   Never quiet.  Always replaying the scenes from our journey.  Forcing me to relive every moment.  Every decision, every fight.  I constantly rethink every little thing.  Hindsight continues to slap my face.   I beg for a redo.  I beg to wake up.  I beg for this to be a horrible mistake.

I sit in the warmth of the sun thinking of how things should be.  You should be spending the day at the beach enjoying your new life and I should be the happiest mom on earth.  You told me how blessed you were to be living by the sea.  I felt that blessing spread to me thinking you found your peace and I could finally take a breath.   Try to pray.   There is nothing left to pray for.   My years of prayers went unanswered.   I feel abandoned by God.

I’m surrounded by beauty but all I can think of is you.  I stare out at the sea and remember the words.   Those words that pierced my soul spoken by the man I trusted to keep you safe.  “People die here everyday”.   Those words run through my head like hot lava spitting from a volcano.   Smoldering and destroying everything in its way.   Were you not a human being?   A wonderful man with a horrible disease.   A loving son and brother or were you just a meal ticket for this man who tossed you away?  The more I remember those words, his I could care less attitude, his I’m too busy to talk about Matt when he finally returned my call, the more I want to scream.

I feel my grief changing.   I feel the hopelessness starting to fade.   An ember has started and a raging fire has erupted in my soul.   Who the hell does J think he is?   How can the state of Florida think that running sober living homes like he obviously does is acceptable?   What happened to you will never be right with me.  Florida, you pissed off the wrong mom.

My first call is to the Florida Office of the Attorney General.   I filed my complaint on the website but that is not enough for me.   I want to talk to this woman.   I want her to know what is going on in her state.  I want her to know that parasites are making a living off addicts.   I want her to know that your mother is outraged and won’t  accept your death quietly.

My next call is to The Department of Health and Human Services.   Next the Governor’s Office.   Your story is being told.   Tears and sobs escape with each phone call.   They are listening.   I feel a strength come over my being.   Like you are here rooting me on.   I owe this to you.   I let you down.  I live with regret everyday.  I had no idea you were flying into a death trap when I bought your ticket to Florida.  Now you are gone and I’m left behind.   The lone wingman.   The one Musketeer.   You and I had a bond like none other.   A bond that even your death cannot sever.   Memories of you flood my mind and break my heart.  Your laugh, your smile forever tucked safely away in my heart.

My ringing phone brings me back to reality.   Your story found it’s way to FARR.   Florida Association of Recovery Residences.   They have begun the battle against the J’s.   Those who prey on the people coming  to Florida for help.    We plan to keep in touch.

Our time here is over and I’m torn.   I want to go home and I want to stay.   A piece of my heart will remain in Florida.   Because of you I have a permanent bond with this state.  There is so much left for me to do.   I feel your spirit.  Your energy by the sea.  I close my eyes and see you standing on the beach you loved.   One of your last pictures before you died.   Joy radiating from your face.   Happiness finally found you only to be brutally ripped away.   You deserved so much more.

Its cold and grey when we land in Philly.   The weather mimics my soul.   We pull into the garage.   The house is silent.   There are no wet noses or wagging tales.   No “Hey Mom, Welcome Home”.   Just a dead silence that takes my breath away.   I drop my bags on the floor.   The memories of another homecoming flood my brain.   You were there.  The dogs on your heels.  Hugs and kisses.  Barking and wagging.  You were so proud of how you cleaned the house.  I remember your beaming smile, “Mom, everything’s done”.   “No dishes or dog hair”.   I remember your laugh.  “Bet your surprised”.

The cold slap of reality brings me back.  I am home and you are gone.

 

 

 

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